Monday, October 2, 2017

Have You Ever?

Well, I experienced a first in my life.  I had to have a blood transfusion.  It was pretty crazy too! 
I was told by my GI in Las Vegas way back on Sept 8th that my bloodwork was bad, I was anemic.   That explains why I feel so weak and horrible!  So he said I need to see a Hematologist and get a blood transfusion.  Weeks went by and I finally got a call from the Hematologist's office.  They set me up for a new patient appointment in early October... well Wow, thanks.  I asked if they'd do the transfusion then, and they said no it was a new patient appointment.  Apparently my GI in Vegas didn't share his concern that I was super in need of a transfusion and to put me through ASAP.  Well... after feeling so awful for weeks (months really), I decided to go in to the emergency room at the Bay Area Hospital and have them to a transfusion.  So I did.  They took my blood for testing, even though I came in with a blood work paper from 3 weeks ago.  They hooked me up with an IV and my blood test results came back and the Doc agreed, I could use a transfusion. 

 Lol, I posted a video!  Yea, this was an experience.  Took 2 1/2 hours!  I rested and had a warm blanket and they kept coming in to take my vitals, of course.  I feel better, but not like super a lot better.  Probably because this is like a band aid remedy.  I need meds to stop my UC flair and bleeding asap.  Prednisone is working only so much and I can't up the dosage on that.  I'm taking 40mg daily until I get my infusions, then I'll taper that off.  NEED the infusions.  Apparently I'll be having Entyvio infusions, not Remicade.  I have messages in to my GI to get scheduled.. no call back yet.  If I don't hear from them by tomorrow Noon, Kelly, my husband, said I could leave a more aggressive message!   Oh, believe me I WILL!  I need relief!  So tired of this. 
Blood bag almost empty.. took a while so I got some good rest!  I drove myself from Coos Bay back to Reedsport.  Didn't affect me that much.  Look at my Moon Face!  Thank you Prednisone!  Can't wait to be done with you!