Well, I experienced a first in my life. I had to have a blood transfusion. It was pretty crazy too!
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I was told by my GI in Las Vegas way back on Sept 8th that my bloodwork was bad, I was anemic. That explains why I feel so weak and horrible! So he said I need to see a Hematologist and get a blood transfusion. Weeks went by and I finally got a call from the Hematologist's office. They set me up for a new patient appointment in early October... well Wow, thanks. I asked if they'd do the transfusion then, and they said no it was a new patient appointment. Apparently my GI in Vegas didn't share his concern that I was super in need of a transfusion and to put me through ASAP. Well... after feeling so awful for weeks (months really), I decided to go in to the emergency room at the Bay Area Hospital and have them to a transfusion. So I did. They took my blood for testing, even though I came in with a blood work paper from 3 weeks ago. They hooked me up with an IV and my blood test results came back and the Doc agreed, I could use a transfusion.
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Lol, I posted a video! Yea, this was an experience. Took 2 1/2 hours! I rested and had a warm blanket and they kept coming in to take my vitals, of course. I feel better, but not like super a lot better. Probably because this is like a band aid remedy. I need meds to stop my UC flair and bleeding asap. Prednisone is working only so much and I can't up the dosage on that. I'm taking 40mg daily until I get my infusions, then I'll taper that off. NEED the infusions. Apparently I'll be having Entyvio infusions, not Remicade. I have messages in to my GI to get scheduled.. no call back yet. If I don't hear from them by tomorrow Noon, Kelly, my husband, said I could leave a more aggressive message! Oh, believe me I WILL! I need relief! So tired of this.
Blood bag almost empty.. took a while so I got some good rest! I drove myself from Coos Bay back to Reedsport. Didn't affect me that much. Look at my Moon Face! Thank you Prednisone! Can't wait to be done with you!